Rare disease roadmap: Paroxysmal nocturnal hemoglobinuria (PNH)


Cancer
Treatment for paroxysmal nocturnal hemoglobinuria (PNH)How medications called monoclonal antibodies, anticoagulants, and stem cell transplants are used to treat PNH.
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Taking care of mental health when living with PNH
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Taking care of mental health when living with PNH

Strategies for coping with the stress of living with a chronic condition like paroxysmal nocturnal hemoglobinuria (PNH).

Understanding and managing fatigue caused by PNH
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Understanding and managing fatigue caused by PNH

A look at how paroxysmal nocturnal hemoglobinuria (PNH) causes and contributes to fatigue, and how treatment can help.

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What people with PNH need to know about blood clots
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What people with PNH need to know about blood clots

Blood clots are the most common severe complication of paroxysmal nocturnal hemoglobinuria (PNH).

What to ask when starting a new treatment for PNH
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What to ask when starting a new treatment for PNH

Ask these questions when prescribed any new treatment for paroxysmal nocturnal hemoglobinuria (PNH).

Strategies to stay organized with PNH treatment
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Strategies to stay organized with PNH treatment

How keeping a personal health record and symptom journal can help you manage paroxysmal nocturnal hemoglobinuria (PNH).

Coping with a delayed diagnosis of PNH
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Coping with a delayed diagnosis of PNH

Misdiagnosis and delays in diagnosis are a challenge for many people living with paroxysmal nocturnal hemoglobinuria.

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