Porphyria: coping with the stress of a chronic condition
Why identifying and reducing stress is essential to the long-term management of porphyria.
Porphyria: tips for working with a healthcare provider
Tips on finding a porphyria specialist, diagnostic tests and what to ask during your appointment.
Do you have porphyria? know the symptoms
Learn to recognize the symptoms of these rare metabolic disorders.
Types of porphyria: acute, cutaneous and more
A look at the different types of porphyria, including acute and cutaneous porphyrias.
Overview
Identifying and avoiding common porphyria triggers
How alcohol, stress, illness and numerous medications can trigger symptoms of this rare disorder.
Learn how to manage acute porphyria and pain
Understanding why acute forms of porphyria cause pain, including chronic pain.
5 answer about carbohydrates and porphyria
Why eating adequate amounts of carbohydrates is important to managing this rare metabolic disorder.
Treatment
Understanding porphyria treatment
Learn about preventing porphyria attacks, managing symptoms and treatments that can help normalize porphyrin levels.
How porphyria can impact sleep (and what to do about it)
The relationship between porphyria and sleep, with strategies that might help if you are struggling to get enough sleep.
4 helpful resources for porphyria patients
Follow these links to find information, specialists, clinical trials and assistance for people with porphyria.
Living With Porphyria
How to help others understand the challenges of AHP
Living with AHP can be difficult, especially if your friends and family don't understand the condition.
Acute intermittent porphyria and long-term complications
Learn about the potential long-term damage caused by the most common form of acute hepatic porphyria.
Why a balanced diet is important to managing porphyria
Learn why maintaining a balanced diet and healthy habits are important aspects of keeping porphyria under control.