Key terms to help you better understand this rare genetic disorder.
Learn about the large nerve tumors called plexiform neurofibromas (pNF) that affect some people with neurofibromatosis.
Links for finding specialists, patient education, family retreats, and summer camps for kids with NF.
Tips and strategies for minimizing stress and feeling less overwhelmed.
Strategies to promote communication among the different healthcare providers you need to work with to treat NF1.
Questions to ask your healthcare team when discussing surgery or medications to treat neurofibromatosis type 1 (NF1).
Plexiform neurofibromas are large tumors that can occur when a person has neurofibromatosis type 1 (NF1)
A look at what we know and don’t know about the relationship between neurofibromatosis type 1 (NF1) and hypertension.
