Why is it important to empower people with rare diseases?
Why is it important to empower people with rare diseases?
People with rare diseases often know as much about their conditions as their doctors, says HealthMaker Gary Gibbons, MD, director of the National Heart, Lung, and Blood Institute. In this video he explains why it's important to educate patients.
Up next
Why is it important to empower people with rare diseases?
Nov 5, 2015
What is sickle cell disease?
Nov 5, 2015
When was sickle cell disease discovered?
Nov 5, 2015
What is the Undiagnosed Disease Program?
Jan 14, 2026
What does it mean to empower a patient?
Sep 9, 2013
When do signs of cardiovascular disease usually appear?
Nov 5, 2015
How many people have sickle cell disease?
Nov 5, 2015
How does sickle cell disease affect the body?
Nov 5, 2015
How are patients admitted into the Undiagnosed Disease Program?
Jan 14, 2026
Do you encourage patients to do internet research?
May 29, 2014
The real struggle and frustration of unexplained illnesses
Jan 7, 2016
Recommended for you
How can I be more consistent?