What you can do now

Don’t be afraid to do the one thing that may be the most important thing on this journey. Your support system is ready to help in any way that they can.

A family member, friend, or partner can ask questions, pass important information to medical staff, and much more.

Are you noticing spotting off schedule? Here are some possible reasons—and when to see a healthcare provider.

Strategies to promote good communication among the different members of your healthcare team for FSGS.

An overview of hospice care, including the benefits it can offer and basic strategies for finding hospice care.

Strategies for working with multiple healthcare providers and specialists during the treatment of CAH.