What is the Undiagnosed Disease Program?

The Undiagnosed Disease Program was created to meet the needs of people with rare disorders that remained undiagnosed. Learn more in this video with HealthMaker Cynthia Tifft, MD, PhD, director of NIH’s Pediatric Undiagnosed Diseases Program.

What to ask your cancer care team when starting any new treatment for a desmoid tumor, including medications and surgery.

An overview of therapies used to treat desmoid tumors, including active surveillance, targeted therapies, and surgery.

Desmoid tumors are noncancerous and do not metastasize, but they can invade nearby tissues and structures.

Why monitoring and managing protein levels in the urine is a focus of treatment for this rare kidney disease.

What to ask your healthcare providers when discussing treatment for nasal polyps, including medications and surgery.