Why is it important to empower people with rare diseases?
People with rare diseases often know as much about their conditions as their doctors, says HealthMaker Gary Gibbons, MD, director of the National Heart, Lung, and Blood Institute. In this video he explains why it's important to educate patients.
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What is sickle cell disease?
When was sickle cell disease discovered?
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How does sickle cell disease affect the body?
How are patients admitted into the Undiagnosed Disease Program?
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Do you encourage patients to do internet research?
